ending the stigma: guts needed to tackle it head on

cross-posted from positive hivblogger

Michael Carchrie Campbell, the face behind positive hivblogger

World AIDS Day 2010

It’s World AIDS Day 2010 today, another year has gone past, those of us living with HIV are still here – and still the stigma is being broken by some of us that are courageous enough to tell our friends, our family, and other people that we are here, living with HIV.

“Coming Out”

That’s right – telling others. So, today, I’m ‘coming out’ publicly on this blog as to I am. Complete with photo.

Unsurprisingly given my job and other interests, I was at a political conference a few weeks ago. I was talking to a friend, who was also in attendance. He was asking what I was doing with my life, I told him that I was still working for my boss two days a week. He asked what I did the rest of the time.

I said:

“I help out down at The HIV Support Centre in Belfast. I’m a Trustee there.”

He asked:

“Is there much need of that, here?”
“Well, going on last year’s figures, there are about two people diagnosed in Belfast each week.”
“That’s bad.”
“Do you know anyone living with HIV?”
“No, I don’t.”

I stretched out my hand, he shook it, and I said,

“Hello, my name’s Michael, and I am living with HIV – you do now.”

My friend was rather stumped for words. But he then asked about how I was coping, and he said that I looked really well, and that I was coping well.

Well, of course, to the outside world, we can all look well – especially when dressed in a suit and tie. Underneath that suit and tie, and underneath the mask of the cheery face, is someone who is still coming to terms with the diagnosis, the need to take medicines daily, and who is learning to slow down as he cannot go as quickly as in the past.

living with stigma: a reality

Not to mention the stigma of living with HIV in Northern Ireland. I am one of the lucky ones. I can tell my friends and family, together with total strangers – but many people living with HIV feel that they cannot.

This is why last year our local HIV-specific charity, The HIV Support Centre took part in the People living with HIV Stigma Index survey. Today, there is an event on at The HIV Support Centre looking at the results of last year’s survey and looking to see what we can do as a society to help those living with HIV.

What you can do today

If you can do nothing else today, find a red ribbon, and put it on. If you can’t do that – do it virtually.

3 thoughts on “ending the stigma: guts needed to tackle it head on

  1. People are often lost for words, as though being HIV+ is unmentionable. So I want, simply, to acknowledge that this is a courageous post, and I thank you for baring this part of your personal life for all to see.

    Many years ago, before we spoke of HIV, perhaps before it was known of in any specific manner, an aunt died after an auto-immune disorder, acquired, we are pretty certain, from a contaminated blood transfusion. The family chooses to think of her illness as something else. We may not speak the name, presumably because, like Voldemort, it is inherently awkward socially.

    Diana Princess of Wales did a huge amount in her short life to de-stigmatise HIV. Those who are HIV+ like you who are open about the ailment do a great deal more, and do it every day.

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  2. Michael

    how very moving I have found your blog, mostly because what I read between the lines is acceptance of the path which I believe has been chosen for you. You have so much to and you do contribute and your personal skills and interests will make you an informed and identifiable advocate for people affected by HIV I wish you continued good health on your journey through life. God Bless you. Jeni

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